Fibromyalgia: My Health Journey

-
Recently I was diagnosed with Fibromyalgia, a multi system chronic condition that is characterised by chronic widespread pain, extreme fatigue, brain fog, digestive complaints and depression. For a sufferer of Fibromyalgia, stress is a major driving force in exasperating symptoms. It is a lifelong condition (there is no cure) but with a range of therapeutic care, symptoms can be managed and even improved. It sounds like a lot, and it is. It has felt like I’d stumbled into a dimly lit tunnel filled with physical and psychological challenges coupled with medical puzzles that needed a large brains trust to solve. I’ve been in this tunnel a long time, but have now stepped into some sunlight. Rather than being completely devastated by this diagnosis, I felt a huge sense of relief, validation and overwhelming gratitude. For my persistent struggle with extreme fatigue, insomnia, digestive complaints, low moods and pain have for the past 7 years made me question my sanity, and doubt my capabil
Post a Comment

Expectations

-

 There is a saying in my family, “Those who are flexible are not easily broken”. Whenever life has dished out circumstances I didn’t anticipate, my natural instinct has been to react negatively; getting upset at the change of plan, or frustrated with the person who didn’t behave in a way I expected them to. So it has been a real challenge for me, to swallow the family motto and be a bit more flexible.

Being flexible certainly has its perks. It enables you to encounter change of plans with grace and can be a real asset when needing to think open-mindedly or creatively about new things. However, our response to life’s curve balls and disappointments go a little deeper than just “being flexible”. It’s also about our expectations; the conscious or unconscious thoughts we’ve believed or held onto.

It must be said that unrealistic expectations are a hidden snare on the pathway to contentment. Sometimes our unrealistic expectations are wrapped up in how we view God.

Recently, I was talking with a friend about a very challenging time in her faith, when she faced significant change. She said part of what made her begin to doubt, was her erroneous view of God. She had subconsciously viewed God as transactional (if I live a Godly life, then God will give me a life free from pain). Her awareness of this, enabled her to begin looking at life and God in new and deeper ways.

After speaking with her, I have reflected on my own thinking and the challenges that face me at the moment. I too am guilty of viewing God as transactional. Yes, I truely desire to live a life that is pleasing to God; longing to walk in his ways and in his will. However, when pain is present and life is hard, I begin to doubt…”Did I do something wrong, is God teaching me a lesson, why is this happening?”  I can know in my head that God disciplines those he loves; but in my disappointment I can internally cry, “I thought I was doing what God wanted me to do. I didn’t think the outcome would be this?”

My vain hope that pain and disappointment could be avoided was a foolish expectation. My limited and sometimes inflexible view of how I imagine life to play out, and how I imagine others to fit in, needs to be tempered by the truth of who God is and how he works.

In all my confusion I come back to a verse that has spoken words of wisdom and comfort to me. Isaiah 55 vs 6 - 9 says, “Seek the Lord while he may be found; call on him while he is near. Let the wicked forsake his way and the evil man his thoughts. Let him turn to the Lord, and he will have mercy on him, and to our God, for he will freely pardon. “For my thoughts are not your thoughts, neither are your ways my ways,” declares the Lord. “As the heavens are higher than the earth, so are my ways higher than your ways and my thoughts than your thoughts.”

It is only when I am reminded of the truth that God is all powerful, all loving and all wise that I begin to turn from my narrow, limited view. My expectations of God, myself and others begin to be reshaped. I surrender my pride (being flexible) and humbly ask God to change me and my thinking. It’s in this surrender that I am able to adjust and rest content that God is working for my good.

Comments

Post a Comment

Popular posts from this blog

A new perspective in grief

-
Typically, the beginning of a new year has always prompted in me a fresh resolve to begin or recommit to a resolution that fell by the wayside long ago; usually a casualty of the inevitable hurly burly of life and the big beautiful mess that it so often is. The turning over of a brand new calendar page will evoke in me an optimism for the year that lies ahead. I am an optimist at heart and therefore am hopeful that a new year will be a little better. Summer has naturally been a time to take stock and plan for the year ahead.  However, this year I’ve approached things very differently. The events of the past 18 months have left on me a big heart wound. Last year was filled with so much sadness and grief, one does not simply turn the page and move on as if all that was in the past has no lasting impact on the present. While the end of a year naturally brings to a conclusion some things, feelings and emotions are a little more elusive to box up. Rather than resolving to do and be someth
Read more

Fibromyalgia: My Health Journey

-
Recently I was diagnosed with Fibromyalgia, a multi system chronic condition that is characterised by chronic widespread pain, extreme fatigue, brain fog, digestive complaints and depression. For a sufferer of Fibromyalgia, stress is a major driving force in exasperating symptoms. It is a lifelong condition (there is no cure) but with a range of therapeutic care, symptoms can be managed and even improved. It sounds like a lot, and it is. It has felt like I’d stumbled into a dimly lit tunnel filled with physical and psychological challenges coupled with medical puzzles that needed a large brains trust to solve. I’ve been in this tunnel a long time, but have now stepped into some sunlight. Rather than being completely devastated by this diagnosis, I felt a huge sense of relief, validation and overwhelming gratitude. For my persistent struggle with extreme fatigue, insomnia, digestive complaints, low moods and pain have for the past 7 years made me question my sanity, and doubt my capabil
Read more

Weakness as my witness.

-
When it comes to raising teens, I’m becoming a seasoned traveller. The journey with them throughout high school is quite the emotional rollercoaster. With the desire to raise a young adult better prepared to face the demands of the adult world, it’s no small job to get them across the Year 12 finish line. In the 10 years I’ve had the privilege of parenting teens, I have observed there are some commonalities in the challenges they face. One being, that many young people desire the approval of their peers… standing out as different is something they avoid where possible. Another being, that grades and comparison to peers can become a personal definition of success or failure - no matter how much you tell them it is not. As a mother, I not only want to have words of wisdom for them, I also want to model to them what a life looks like that is shaped and defined by Christ and who I am in him. But here lies a struggle for me - the older I get the more I am aware of my weakness, sometimes to
Read more